8th International Conference on Pervasive Computing Technologies for Healthcare

Research Article

Findings of Mobile based Palliative Care System: Towards a Generic Framework for Measuring QoL

  • @INPROCEEDINGS{10.4108/icst.pervasivehealth.2014.254960,
        author={Md Haque and Md Adibuzzaman and Md Uddin and Ferdaus Kawsar and Sheikh Ahamed and Richard Love and David Roe and Rumana Dowla and Tahmina Ferdousy and Reza Salim},
        title={Findings of Mobile based Palliative Care System: Towards a Generic Framework for Measuring QoL},
        proceedings={8th International Conference on Pervasive Computing Technologies for Healthcare},
        publisher={ICST},
        proceedings_a={PERVASIVEHEALTH},
        year={2014},
        month={7},
        keywords={health breast cancer mobile computing qol},
        doi={10.4108/icst.pervasivehealth.2014.254960}
    }
    
  • Md Haque
    Md Adibuzzaman
    Md Uddin
    Ferdaus Kawsar
    Sheikh Ahamed
    Richard Love
    David Roe
    Rumana Dowla
    Tahmina Ferdousy
    Reza Salim
    Year: 2014
    Findings of Mobile based Palliative Care System: Towards a Generic Framework for Measuring QoL
    PERVASIVEHEALTH
    ACM
    DOI: 10.4108/icst.pervasivehealth.2014.254960
Md Haque1,*, Md Adibuzzaman1, Md Uddin1, Ferdaus Kawsar1, Sheikh Ahamed1, Richard Love2, David Roe2, Rumana Dowla3, Tahmina Ferdousy3, Reza Salim3
  • 1: Marquette University
  • 2: IBCRF
  • 3: Amader Gram
*Contact email: msunny1535@gmail.com

Abstract

Here we present the final analysis result of e-ESAS, a mobile based symptom monitoring and management system for terminally ill breast cancer (BC) patients in rural Bangladesh. These patients need palliative care support whose goal is to meet patients’ social, spiritual and psychological needs as well as alleviating pain and other symptoms. But in the context of rural Bangladesh, doctors find it very difficult to control even the most significant symptom ‘pain’ due to a lack of history of symptom data. In this scenario we have deployed e-ESAS which has been used by 10 patients to submit symptom values from their home for 10 months (Nov ’11- Sep ’12). Our results show how e-ESAS with motivational videos not only helped the patients to have a ‘dignified’ life but also helped the doctors to achieve the goals of palliative care. Also the analyzed results are shown in 4 categories to appropriately measure the contribution of e-ESAS in improving the quality of life (QoL) of the patients.