Research Article
Supporting Medical Research on Chronic Diseases using Integrated Health Monitoring Platform
@INPROCEEDINGS{10.4108/icst.mobihealth.2014.257211, author={Artur Krukowski and Emmanouela Vogiatzaki and Marios Charalambides and Michalis Chouchoulis}, title={Supporting Medical Research on Chronic Diseases using Integrated Health Monitoring Platform}, proceedings={eHealth@Home - Infrastructure and services for remote multi-parametering monitoring, analysis and support}, publisher={IEEE}, proceedings_a={EHEALTH}, year={2014}, month={12}, keywords={personal health record phr ehr e-health privacy}, doi={10.4108/icst.mobihealth.2014.257211} }- Artur Krukowski
Emmanouela Vogiatzaki
Marios Charalambides
Michalis Chouchoulis
Year: 2014
Supporting Medical Research on Chronic Diseases using Integrated Health Monitoring Platform
EHEALTH
ICST
DOI: 10.4108/icst.mobihealth.2014.257211
Abstract
This paper describes combined experiences in developing PHR platforms and ser-vices with respect of supporting medical research into the causes and relationships among physiological parameters and health problems concerning different chron-ic diseases, from cardiovascular to stroke, epilepsy, and others. Electronic (EHR) and Personal Health Records (PHR) are presented as new technological ap-proaches aimed at standardising electronic management of medical information between the patient and its physicians, as well as among medical organisations collaborating in providing integrated medical care services. We describe roles and aims behind electronic health recording, follow with applicable legal and stand-ardisations frameworks and European activities in this area, leading towards in-troduction to most common commercial as well as open-source implementations of such systems and concluding with indication of specific adaptations enabling the use of stored personal health data for scientific research into causes and eval-uation of chronic illnesses. We also describe ethical and privacy concerns that are relevant to using and exchanging electronic health information.