Research Article
Articulating a Patient-Centered Design Space for Cancer Journeys
@ARTICLE{10.4108/eai.21-3-2017.152394, author={M.L. Jacobs and J. Clawson and E.D. Mynatt}, title={Articulating a Patient-Centered Design Space for Cancer Journeys}, journal={EAI Endorsed Transactions on Pervasive Health and Technology}, volume={3}, number={9}, publisher={EAI}, journal_a={PHAT}, year={2017}, month={3}, keywords={Pervasive healthcare, patients' needs, breast cancer, holistic care.}, doi={10.4108/eai.21-3-2017.152394} }- M.L. Jacobs
J. Clawson
E.D. Mynatt
Year: 2017
Articulating a Patient-Centered Design Space for Cancer Journeys
PHAT
EAI
DOI: 10.4108/eai.21-3-2017.152394
Abstract
Cancer journeys, encompassing patients’ cancer experiences through survivorship, are complex and diverse. Individuals must cope with numerous physical and emotional challenges, balancing clinical tasks alongside responsibilities of daily life. Understanding the breadth of factors that contribute to a patient’s cancer experience presents a critical challenge in developing holistic patient-centered technology. To further our understanding of the cancer journey, we conducted focus groups and interviews with 31 breast cancer patients. We present a cancer journey framework depicting the responsibilities, challenges, and personal impacts patients face while transitioning from diagnosis through post-treatment survivorship. Through this work, we aim to aid the development of health tools that consider a patient’s cancer journey and health needs more broadly, supporting patient’s health management alongside the complexities and priorities of daily life.
Copyright © 2017 M.L. Jacobs et al., licensed to EAI. This is an open access article distributed under the terms of the Creative Commons Attribution licence (http://creativecommons.org/licenses/by/3.0/), which permits unlimited use, distribution and reproduction in any medium so long as the original work is properly cited.
