Unveiling Challenges Faced by Mothers of Children with Disabilities: A Qualitative Exploration

In the conventional paradigm of parenting, mothers are often exclusively burdened, yet those raising children with disabilities grapple with a more complex reality. This qualitative study, employing two focus group discussions, delves into the multitude of challenges confronting these mothers, particularly in efforts to access health services for their children in Indonesia. Study findings show that children's disabilities are unique, and the challenges faced by mothers and families are complex and varied. There are at least four challenges faced by mothers and families caring children with disabilities, namely attitude (stereotype and social stigma), finance (health insurance, poverty, high costs, and extra costs), physics (public facilities not yet inclusive), and information (limited access). The study underscores the urgency of comprehensive and inclusive policies to address these challenges and to encourage increased societal awareness to eradicate stigma. Ultimately, the research highlights the imperative need for a more empathetic and supportive society for mothers navigating the unique challenges of raising children with disabilities.