Research Article
Applying participatory design with dementia stakeholders: Challenges and lessons learned from two projects
@INPROCEEDINGS{10.4108/eai.20-4-2018.2276362, author={Luiz Henrique Costa Costa B. Cavalcanti and Richard J Holden and Yamini Lalama Patnaik Karanam}, title={Applying participatory design with dementia stakeholders: Challenges and lessons learned from two projects}, proceedings={12th EAI International Conference on Pervasive Computing Technologies for Healthcare -- Demos, Posters, Doctoral Colloquium}, publisher={EAI}, proceedings_a={PERVASIVEHEALTH - EAI}, year={2018}, month={8}, keywords={participatory design dementia}, doi={10.4108/eai.20-4-2018.2276362} }- Luiz Henrique Costa Costa B. Cavalcanti
Richard J Holden
Yamini Lalama Patnaik Karanam
Year: 2018
Applying participatory design with dementia stakeholders: Challenges and lessons learned from two projects
PERVASIVEHEALTH - EAI
EAI
DOI: 10.4108/eai.20-4-2018.2276362
Abstract
Researchers and designers find it challenging to use traditional research methods to establish cognitive and affective empathy with persons with dementia (PWD) and informal caregivers of PWD (CPWD). We used participatory design (PD) to learn about and design for the experiences of PWD and CPWD. In this paper, we present our experience applying PD in one design project with PWD and another with CPWD. We discuss the challenges we faced regarding choice of method, relationship with project partners, and working with an older, cognitively impaired population. Finally, we describe lessons learned using PD methods with PWD and CPWD.
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