Teens dealing with MRKH syndrome to achieve self-actualization: is it unequal gender decision?

Mayer Rokitansky Kuster Hauser Syndrome (MRKH) is the condition when the uterus and/or the vagina are underdeveloped in female. The chief complaint is mostly not getting menstruation. The surgical treatment is thought to be the best cured. However, the psycho-socio aspect when the MRKH syndrome was diagnosed, and then the struggle of the patients and their families, just begins. Therefore, the research question in this preliminary study was about their strategy to deal with MRKH syndrome. Our participants were three teenagers aged 16-19 year old. The in-depth interview was used to collect the data. The results showed that their parents were confused and stressed out. The patients were diagnosed as having no uterus or vagina, even though they had the ovarium. To have the treatment by surgical approach would not be useful for them, so the alternative medicine became another solution to seek treatment (such as massage, to see the „kyai’ or others). It is concluded that psychosocial aspect became a more dominant problem to deal with in patients with MRKH syndrome. It is suggested that they seek professional and community assistance to overcome this almost neglected problem.