Research Article
Benefits and Costs of Patient Generated Data, From the Clinician’s and Patient’s Perspective
@INPROCEEDINGS{10.1145/3154862.3154920, author={Heleen Rutjes and Martijn C. Willemsen and Janne Kollenburg and Sander Bogers and Wijnand A. IJsselsteijn}, title={Benefits and Costs of Patient Generated Data, From the Clinician’s and Patient’s Perspective}, proceedings={11th EAI International Conference on Pervasive Computing Technologies for Healthcare}, publisher={ACM}, proceedings_a={PERVASIVEHEALTH}, year={2018}, month={1}, keywords={patient-generated data personal health records patient-physician relationship health care professional data science data visualization quantified self}, doi={10.1145/3154862.3154920} }- Heleen Rutjes
Martijn C. Willemsen
Janne Kollenburg
Sander Bogers
Wijnand A. IJsselsteijn
Year: 2018
Benefits and Costs of Patient Generated Data, From the Clinician’s and Patient’s Perspective
PERVASIVEHEALTH
ACM
DOI: 10.1145/3154862.3154920
Abstract
In the relation between patient and clinician, communication is a central aspect. In this short paper, we conceptualize patient-generated data (PGD) as a means of communication. We present a case study in which we explore the experiences of clinicians and patients with PGD. We identify and discuss some real-world trade-offs in using PGD both effectively and meaningfully in clinical practice. Our key finding is that data collection and sharing is about a lot more than the data itself, and that a process of collective meaning making is required to focus on clinically relevant information, and to ground the communication in a sufficiently shared understanding of the subjective experiences associated with objective data points.
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