Electronic Healthcare. Second International ICST Conference, eHealth 2009, Istanbul, Turkey, September 23-15, 2009, Revised Selected Papers

Research Article

Enabling Technology to Advance Health-Protecting Individual Rights-Are We Walking the Talk?

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  • @INPROCEEDINGS{10.1007/978-3-642-11745-9_9,
        author={Crystal Sharp and Femida Gwadry-Sridhar},
        title={Enabling Technology to Advance Health-Protecting Individual Rights-Are We Walking the Talk?},
        proceedings={Electronic Healthcare. Second International ICST Conference, eHealth 2009, Istanbul, Turkey, September 23-15, 2009, Revised Selected Papers},
        proceedings_a={E-HEALTH},
        year={2012},
        month={5},
        keywords={eHealth electronic health records consent Google Health Microsoft Vault personal health records privacy confidentiality},
        doi={10.1007/978-3-642-11745-9_9}
    }
    
  • Crystal Sharp
    Femida Gwadry-Sridhar
    Year: 2012
    Enabling Technology to Advance Health-Protecting Individual Rights-Are We Walking the Talk?
    E-HEALTH
    Springer
    DOI: 10.1007/978-3-642-11745-9_9
Crystal Sharp1,*, Femida Gwadry-Sridhar1
  • 1: Lawson Health Research Institute
*Contact email: crystal.sharp@lawsonresearch.com

Abstract

The evolving structure and business of health care services and delivery need the functionality and capability offered by electronic health record (EHR) systems. By electronically diffusing the traditional patient record, however, this new model blurs the long-established medical data home, raising concerns about data ownership, confidentiality, access and individual rights. In 2008 the Lawson Health Research Institute began the process of instituting a robust health informatics and collaborative research infrastructure, now known as I-THINK Research. As data are migrated to the platform and policies are developed, we are forced to confront the complexity of issues around protection of individual rights. The paper presents, in a broader context, the main issues surrounding the privacy debate and the need for education, accountability and new legislation to help define and protect individual rights as new e-health business models emerge.