EAI Endorsed Transactions on Pervasive Health and Technology 17(10): e1

Research Article

Tailored, theory-based strategies for engaging lowincome populations with a personal health record

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  • @ARTICLE{10.4108/eai.13-7-2017.152885,
        author={Tammy Toscos and Maria D. Wright and Mindy E. Flanagan and Kislaya Kunjan and Amy Olson-Miller and Bradley N. Doebbeling},
        title={Tailored, theory-based strategies for engaging lowincome populations with a personal health record},
        journal={EAI Endorsed Transactions on Pervasive Health and Technology},
        volume={17},
        number={10},
        publisher={EAI},
        journal_a={PHAT},
        year={2017},
        month={7},
        keywords={Pervasive health care; patient engagement; health information technology; communication technology; underserved populations; low income populations; personal health record; personal health record.},
        doi={10.4108/eai.13-7-2017.152885}
    }
    
  • Tammy Toscos
    Maria D. Wright
    Mindy E. Flanagan
    Kislaya Kunjan
    Amy Olson-Miller
    Bradley N. Doebbeling
    Year: 2017
    Tailored, theory-based strategies for engaging lowincome populations with a personal health record
    PHAT
    EAI
    DOI: 10.4108/eai.13-7-2017.152885
Tammy Toscos1,*, Maria D. Wright2, Mindy E. Flanagan2, Kislaya Kunjan3, Amy Olson-Miller3, Bradley N. Doebbeling4,5
  • 1: Parkview Research Center, Parkview Health, Fort Wayne, IN; School of Informatics & Computing, Indiana University Purdue University, Indianapolis, IN
  • 2: Parkview Research Center, Parkview Health, Fort Wayne, IN
  • 3: School of Informatics & Computing, Indiana University Purdue University, Indianapolis, IN
  • 4: School for the Science of Health Care Delivery, College of Health Solutions, Arizona
  • 5: State University, Phoenix, AZ
*Contact email: Tammy.Toscos@parkview.com

Abstract

There remain significant barriers to the use of personal health records (PHRs), which limit potential benefits in underserved patient populations. Novel strategies must be developed to achieve the desired impact of PHRs on patient engagement and health outcomes. This paper describes the health information needs and technology preferences of adults seeking care in Community Health Centers (CHCs), which provide care to low-income, uninsured and underinsured patients. We offer design suggestions emerging from interviews with 43 CHC patients and 49 CHC staff members that explored many themes including: patient barriers to accessing health care, health information needs of patients between clinic visits, patient and clinic staff preferences for technology use, and PHR implementation approaches used in CHCs. Our findings provide a roadmap to greater engagement of patients via PHRs by expanding functionality, providing tailored patient messaging, and incorporating adult learning strategies.