6th International Conference on Pervasive Computing Technologies for Healthcare

Research Article

Balancing Caregiver and Clinician Needs in a Mobile Health Informatics Tool for Preterm Infants

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  • @INPROCEEDINGS{10.4108/icst.pervasivehealth.2012.248716,
        author={Karen Tang and Sen Hirano and Karen Cheng and Gillian Hayes},
        title={Balancing Caregiver and Clinician Needs in a Mobile Health Informatics Tool for Preterm Infants},
        proceedings={6th International Conference on Pervasive Computing Technologies for Healthcare},
        publisher={IEEE},
        proceedings_a={PERVASIVEHEALTH},
        year={2012},
        month={7},
        keywords={preterm infants prematurity health informatics capture and access clinicians pediatric informatics mobile devices},
        doi={10.4108/icst.pervasivehealth.2012.248716}
    }
    
  • Karen Tang
    Sen Hirano
    Karen Cheng
    Gillian Hayes
    Year: 2012
    Balancing Caregiver and Clinician Needs in a Mobile Health Informatics Tool for Preterm Infants
    PERVASIVEHEALTH
    ICST
    DOI: 10.4108/icst.pervasivehealth.2012.248716
Karen Tang1,*, Sen Hirano1, Karen Cheng1, Gillian Hayes1
  • 1: University of California, Irvine
*Contact email: kptang@ics.uci.edu

Abstract

Preterm infants have significantly higher rates of functional limitations and are at risk for delays in cognitive, motor, and other skills. Through high-risk infant follow-up (HRIF) programs and other early detection methods, these delays and complications can be reduced. However, these interventions require substantial resources and can create extra burden on families. In this paper, we present the results of a qualitative design study to understand the needs of these families and their professional caregivers. These results reveal diverse challenges facing parents and clinicians attempting to document, understand, and share infant health data that must be balanced in any pervasive health solution. In particular, parents described struggling with when to collect data, while clinicians reported being more concerned about what and how parents track infant health. Based on these results, we present five design implications for applications for preterm infant care, which we incorporated into the design of Estrellita, a mobile health informatics tool to support caregivers of preterm infants.